1
McNamara B. Fragile lives: death, dying and care. Crowns Nest, N.S.W.: Allen & Unwin 2001.
2
Mary, Talbot. In a secular age, what does it mean to die a good death? | Aeon Essays. https://aeon.co/essays/in-a-secular-age-what-does-it-mean-to-die-a-good-death
3
Kira, Cochrane. Bucket lists: are they a good idea? | Life and style | The Guardian. https://www.theguardian.com/lifeandstyle/2012/sep/26/bucket-lists-are-they-good-idea
4
Steinhauser KE, Clipp EC, McNeilly M, et al. In Search of a Good Death: Observations of Patients, Families, and Providers. Annals of Internal Medicine. 2000;132. doi: 10.7326/0003-4819-132-10-200005160-00011
5
McManus R. Death in a global age. Basingstoke, Hampshire: Palgrave Macmillan 2013.
6
Beaglehole R, Yach D. Globalisation and the prevention and control of non-communicable disease: the neglected chronic diseases of adults. The Lancet. 2003;362:903–8. doi: 10.1016/S0140-6736(03)14335-8
7
Kellehear A. A social history of dying. Cambridge: Cambridge University Press 2007.
8
Ezekiel, Emanuel. Why I Hope to Die at 75 - The Atlantic. http://www.theatlantic.com/magazine/archive/2014/10/why-i-hope-to-die-at-75/379329/
9
State of World Population | UNFPA - United Nations Population Fund. http://www.unfpa.org/swop
10
Walter T. The revival of death. London: Routledge 1994.
11
McManus R. Death in a global age. Basingstoke, Hampshire: Palgrave Macmillan 2013.
12
Illich I. Limits to medicine: medical nemesis : the expropriation of health. London: Penguin 1990.
13
Philip A. Mellor and Chris Shilling. MODERNITY, SELF-IDENTITY AND THE SEQUESTRATION OF DEATH. Sociology. 1993;27:411–31.
14
Clark D, Graham F, Centeno C. Changes in the world of palliative care. Medicine. 2015;43:696–8. doi: 10.1016/j.mpmed.2015.09.012
15
Clark D. Between hope and acceptance: the medicalisation of dying. BMJ : British Medical Journal. 2002;324.
16
Clark D. Palliative care in the global context: Understanding policies to support end-of-life care. In: Cohen J, Deliens L, eds. A Public Health Perspective on End of Life Care. Oxford University Press 2012:215–26.
17
Clare Humphreys. ‘Waiting for the last summons’: The establishment of the first hospices in England 1878-1914. Mortality. 2001;6.
18
The Economist Intelligence Unit. The 2015 Quality of Death Index: Ranking palliative care across the world.
19
Miles L, Corr CA. Death Cafe. OMEGA - Journal of Death and Dying. 2017;75:151–65. doi: 10.1177/0030222815612602
20
Allan Kellehear. Compassionate communities: end-of-life care as everyone’s responsibility. QJM. 2013;106:1071–5. doi: 10.1093/qjmed/hct200
21
Claire, Davies. A death cafe helps us to eat cake at the end of life’s road | Aeon Essays. https://aeon.co/essays/a-death-cafe-helps-us-to-eat-cake-at-the-end-of-life-s-road
22
Kastenbaum R. "Healthy Dying”: A Paradoxical Quest Continues. Journal of Social Issues. 1979;35:185–206. doi: 10.1111/j.1540-4560.1979.tb00794.x
23
Kellehear A. Are we a ‘death-denying’ society? A sociological review. Social Science & Medicine. 1984;18:713–21. doi: 10.1016/0277-9536(84)90094-7
24
Armstrong D. Silence and truth in death and dying. Social Science & Medicine. 1987;24:651–7. doi: 10.1016/0277-9536(87)90308-X
25
Kumar SK. Kerala, India: A Regional Community-Based Palliative Care Model. Journal of Pain and Symptom Management. 2007;33:623–7. doi: 10.1016/j.jpainsymman.2007.02.005
26
Vijay D, Kulkarni M. Frame Changes in Social Movements: A Case Study. Public Management Review. 2012;14:747–70. doi: 10.1080/14719037.2011.642630
27
Vijay D, Zaman S, Clark D. Translation of a community palliative care intervention: Experience from West Bengal, India. Wellcome Open Research. 2018;3. doi: 10.12688/wellcomeopenres.14599.1
28
Zaman S, Whitelaw A, Richards N, et al. A moment for compassion: emerging rhetorics in end-of-life care. Medical Humanities. 2018;44:140–3. doi: 10.1136/medhum-2017-011329
29
Sallnow L, Kumar S, Kellehear A, editors. International perspectives on public health and palliative care. London: Routledge 2013.
30
Abraham AA, Jithesh V. The Kerala Experience in Palliative Care: An Ethical Exploration from the Public Health Perspective. Asian Bioethics Review. ;4:14–28.
31
Norwood F. Nothing More To Do: Euthanasia, General Practice, and End-of-Life Discourse in the Netherlands. Medical Anthropology. 2007;26:139–74. doi: 10.1080/01459740701283165
32
Lawton J. The dying process: patients’ experiences of palliative care. London: Routledge 2000.
33
Pool R. Negotiating a good death: euthanasia in the Netherlands. New York: Routledge 2013.
34
Finlay IG, George R. Legal physician-assisted suicide in Oregon and The Netherlands: evidence concerning the impact on patients in vulnerable groups--another perspective on Oregon’s data. Journal of Medical Ethics. 2011;37:171–4. doi: 10.1136/jme.2010.037044
35
Battin MP. Legal physician‐assisted dying in Oregon and the Netherlands: evidence concerning the impact on patients in "vulnerable” groups. Journal of Medical Ethics. 2007;33. doi: 10.1136/jme.2007.022335
36
Seale C, Addington-Hall J. Dying at the best time. Social Science & Medicine. 1995;40:589–95. doi: 10.1016/0277-9536(95)80003-3
37
Richards N. Assisted Suicide as a Remedy for Suffering? The End-of-Life Preferences of British "Suicide Tourists”. Medical Anthropology. 2017;36:348–62. doi: 10.1080/01459740.2016.1255610
38
Seymour J, Clark D. The Liverpool Care Pathway for the Dying Patient: a critical analysis of its rise, demise and legacy in England. Wellcome Open Research. 2018;3. doi: 10.12688/wellcomeopenres.13940.2
39
Rabbi Baroness Julia Neuberger. The Liverpool Care Pathway: what went right and what went wrong. British Journal of Hospital Medicine. Published Online First: 10 March 2016. doi: 10.12968/hmed.2016.77.3.172
40
More Care, Less Pathway - Liverpool Care Pathway.
41
George R. The Liverpool Care Pathway for the Dying (LCP): Lost in translation and a tale of elephants, men, myopia – and a horse. Palliative Medicine. 2014;28:3–7. doi: 10.1177/0269216313514706
42
Chan RJ, Webster J, Phillips J, et al. The withdrawal of the Liverpool Care Pathway in the United Kingdom: what are the implications for Australia? The Medical Journal of Australia. 2014;200:573–573. doi: 10.5694/mja13.10998
43
Clark J. Staff perceptions of the impact of the Liverpool Care Pathway in aged residential care in New Zealand. International Journal of Palliative Nursing. Published Online First: 28 September 2013. doi: 10.12968/ijpn.2012.18.4.171
44
Koon OE, Neo Hui Shan S, Shivananda S, et al. Use of a Modified Liverpool Care Pathway in a Tertiary Asian Hospital: Is There Still a Role for It? Journal of Palliative Medicine. 2015;18:506–12. doi: 10.1089/jpm.2014.0343
45
Raijmakers N, Dekkers A, Galesloot C, et al. Barriers and facilitators to implementation of the Liverpool Care Pathway in the Netherlands: a qualitative study. BMJ Supportive & Palliative Care. 2015;5:259–65. doi: 10.1136/bmjspcare-2014-000684
46
Wilkinson AM, Johnson CE, Walker H, et al. Evaluating the Liverpool Care Pathway for care of the terminally ill in rural Australia. Supportive Care in Cancer. 2015;23:3173–81. doi: 10.1007/s00520-015-2697-6
47
McConnell T, O’Halloran P, Porter S, et al. Systematic Realist Review of Key Factors Affecting the Successful Implementation and Sustainability of the Liverpool Care Pathway for the Dying Patient. Worldviews on Evidence-Based Nursing. 2013;10:218–37. doi: 10.1111/wvn.12003
48
Costantini M, Romoli V, Leo SD, et al. Liverpool Care Pathway for patients with cancer in hospital: a cluster randomised trial. The Lancet. 2014;383:226–37. doi: 10.1016/S0140-6736(13)61725-0
49
Clark D, Inbadas H, Colburn B, et al. Interventions at the end of life – a taxonomy for ‘overlapping consensus’. Wellcome Open Research. 2017;2. doi: 10.12688/wellcomeopenres.10722.1
50
Alexi A. Wright. Associations Between End-of-Life Discussions, Patient Mental Health, Medical Care Near Death, and Caregiver Bereavement Adjustment. JAMA. ;300:1665–73. doi: 10.1001/jama.300.14.1665
51
Temel JS, Greer JA, Muzikansky A, et al. Early Palliative Care for Patients with Metastatic Non–Small-Cell Lung Cancer. New England Journal of Medicine. 2010;363:733–42. doi: 10.1056/NEJMoa1000678
52
Zur Soziologie Des Sterbens: Aktuelle Theoretische Und Empirische Beitrage. Springer vs 2016.
53
Gawande A, Wellcome Collection, Ebooks Corporation Limited. Being mortal: aging, illness, medicine and what matters in the end. London: Profile Books 2014.